Sunday , 15 September 2019
Home » Projects & Campaigns » LOROS RESEARCH – EXPERIENCES OF CARERS OF BAME PATIENTS WHO HAVE DIED OF ADVANCED ILLNESS WITHIN LAST 3-12 MONTHS

LOROS RESEARCH – EXPERIENCES OF CARERS OF BAME PATIENTS WHO HAVE DIED OF ADVANCED ILLNESS WITHIN LAST 3-12 MONTHS

Matilda Hanjari, who works for LOROS,  IS employed by LOROS to  work on NIHR funded qualitative project titled: ‘Thinking Ahead about Medical Treatments in Advanced Illness’: A qualitative study of barriers and enablers in end-of-life care planning with patients and families from Black, Asian and Minority Ethnic (BAME) background.

 

As part of this study they will be recruiting bereaved family care givers who do not have to be from a BAME background but must have cared for someone from a BAME background.

 

They would appreciate help to reach BAME populations from your networks/community groups or other forums that can help them recruit the population targeted in this study (bereaved family care givers). Below please find the study flier to explain briefly what the study is about and recruitment flow chart to explain the eligibility criteria and how to signpost potential participants to the study team. They kindly request your support in referring people to the study.

If you have any questions please do not hesitate to contact research@loros.co.ukTel. 0116 2318498.

 

Thank you for your help.

 

The Study involves:

  • Exploring experiences of bereaved Family Care Givers (FCG) of BAME patients who died of advanced illness within last 3-12 months
  • Aim – Improve care of BAME population with serious illness

 

 

THINKING AHEAD: EXPLORING AND UNDERSTANDING EXPERIENCES AND DECISIONS IN END OF LIFE CARE

Are you from an ethnic background and would you be willing to share your thoughts and experiences of caring for a relative or close friend who has died from a serious illness in the last 3 to 12 months?

Our aim is to find out about the experiences of people from ethnic backgroundsliving with serious illness. We would like to speak to a family or friend carer and a doctor or nurse who supported the patient towards the end of their life.The information we collect will help us improve the training that doctors and nurses have and the care they provide for patients and their families.

Participating in this study will involve a one to one interview with a member of the research team. The interview can take place in your home, at LOROS Hospice or another location of your choice and arranged at your convenience. This will be an informal discussion, usually lasting up to an hour.

If you would like information in a language other than English then this is available in a video format on the website https://www.loros.co.uk/thinkingahead/

 

If you might be interested and would like more information then please contact the LOROS Research Team on:

Email:research@loros.co.uk

Telephone:0116 2318498